Our life seems to be a bit of a roller coaster these days.  To tell you the truth it’s been a roller coaster the last 4 months of the pregnancy as well.   The unknowns were so great….the fun thing with trisomy 18.  Each case is so different.  There are no text book answers.  Most babies die in utero, which in turn made me on edge the whole pregnancy.  Have I felt Jules kick yet?  When was the last time she moved.  We should stick close to home in case something happens.  Will I go into  labor early?  and the list goes on…

I can’t say the roller coaster has let up much since we had Jules.  Actually, it’s gotten a bit more intense.  Will Jules be born alive?  Yep! (Praise Jesus)

Will she make it through the night??  She’s a fighter!!

Will she stop breathing?? Sometimes, but she comes back:)

How long will she live??

and the list goes on…

So, instead of living in fear each day that it might be the last we have with her, we’ve decided to embrace each day we have and make the most of it.  I can’t say it’s not hard to get a little optimistic when she fights so hard though!

So, here’s how we’ve been enjoying our time.

We had our first outing to the doctor on Monday….

We also found out how much little lady loves the tubby.  She just yawns and coos while she’s in there…

She especially loves kicking her left leg straight out:)

and after that we had a 1 week party for baby girl:) Kynlee and Tate helped make Cupcakes.

and Baby Girl got all dressed up!

We are so enjoying being a family of 5!

Most of the family came to celebrate.  It was great to get a picture of Jules with her family.

Throughout the rest of the week we were spoiled with meals coming in, flowers being delivered, and visitors stopping by to say hi.  Have I mentioned how blessed we are??

By Friday though we were getting a bit antsy to get out of the house.  My sister came over from Wisconsin with her four kids to come and meet Jules.  They are staying at a hotel nearby and mom was having a hard time being the only one staying home, so we decided to make it our first official outing, and it worked out well since we were the only ones at the pool.

The kids loved it! It was good for them to burn off some energy!

and Jules thought it was pretty fun too!

Although she did need a little bit of oxygen while we were there.

The Lord has blessed us with almost 2 weeks.  We are so lucky!  And your prayers are helping our family immensely! Only God knows how this story will end and we continually press into Him for the peace and understanding we need to continue this journey.